National Epilepsy Awareness Month

Readers of Channelling Dolly know that I love to keep things light and happy here. Sometimes though we have to deal with difficult subjects. With November being National Epilepsy Awareness Month I wanted to spread some info about a subject that is near and dear to my heart. 

First some facts:

Did you know that epilepsy claims more lives every year in the United States than breast cancer? 

1 in 26 people will be diagnosed with epilepsy in their lifetime. 

Over 3 million people in America and over 65 million worldwide have epilepsy. 1/3 of those people have uncontrollable seizures because none of the available treatments work for them.For nineteen years I have worked for a manufacturing company that produces the VNS Therapy for people who suffer from treatment-resistant epilepsy. We create a device that is implanted inside the patient’s body and sends pulses to the vagus nerve to help control seizures. Before working in this field I had no idea that this disease could be so debilitating. It is an honor to create something that can change the lives of so many patients.  We often meet people who are able to finally do things that so many of us take for granted. This gives us all such an appreciation for what we do. 

Here are some of my coworkers and I spreading the word:

National Epilepsy Awareness Month

What can you do to spread the word on supporting the fight against epilepsy?

  • Wear purple during the month of November. 
  • Visit the Epilepsy Foundation website to get information whether you have epilepsy, know someone who does or just want to support the cause. 
  • If you have children, teach them about seizures in a way that they can understand. This will be very helpful should they have classmates with epilepsy. 

Should you want to help through donations the Epilepsy Foundation website has many options from monetary gifts as well as fundraising activities throughout the year. Please check that out! 

42 thoughts on “National Epilepsy Awareness Month”

    1. Reesa you are very welcome! I knew very little about it before working at my job, so I am happy to share the info and hopefully help someone!

  1. Thank you for the reminder about epilepsy. Its so important to keep sharing this information so that we are continually aware, and are better able to support those who can really benefit from extra love! And yes to wearing purple as a great reminder!

    1. Karen thank you! It is really important as epilepsy does not get the same level of attention focused on awareness as many other diseases.

    1. Jessica it is so very often overlooked. I really don’t understand why! You are very welcome. I am happy to help even if it is in a small way!

  2. I had no idea on any of this! I usually do a breast cancer run every year but they don’t do one in my area so I’ll have to see if they do this. It would be great to be able to give back a little.

    1. Angela check out your local branch of the Epilepsy Foundation and they should have some events close by. Our area has a yearly walk at the zoo which is always a fun event!

    1. Thank you Taylor! So glad you got inspiration from the post. I didn’t know much at all about it when I started working at my job.

    1. Thank you Amber! Working at my job has been eye-opening to me in learning about epilepsy. It is so very sad what people have to suffer through.

  3. I didn’t know about this in the month of November! One of my friend’s brothers has suffered from this starting as a young child and it’s so great to bring awareness. <3

    1. Thank you Nikki! I hope all is well with your friend’s brother. A friend of mine has a son with epilepsy and seeing her Facebook posts about his seizures at school breaks my heart.

    1. Thank you Anna! I am glad to give you some info about it! It truly is something that does not get the attention that it deserves!

    1. Thank you Stephanie! It really is amazing to meet people who we have given a new lease on life to. Makes it easy to get up in the morning and go to work! 🙂

  4. I have 3 dear people in my circle of friends/family who was born with epilepsy. It is a daily struggle for them. Thank you for helping to raise awareness.

  5. Epilepsy is a very frightening condition. I have a cousin who has epilepsy and she has dealt with it all her life. I also had a yorkie who suffered from grand mal seizures. So scary!

    1. Christina thank you for sharing. I hope your cousin is able to find something to lessen her seizures. I had a border collie Tina who had seizures. I never knew that dogs could have epilespy as well, but you are right it is very scary. We learned how to help calm her, but I never learned how to calm myself during those moments. It is so scary and sad when you can’t help someone you love…even if that someone is furry!

  6. I’ve had first hand experience with this, it can really get in the way of your life. My friend in High School would have random attacks and I can only imagine how it’s like.

    1. I’m sure that it was so scary Amanda to know how to deal with such a huge issue at that age. I hope your friend is able to control thier seizures now. I have a friend who’s son is going through the same thing right now at that age, having problems controlling his. It breaks my heart to hear her updates.

  7. This brought back some sad memories for me. I lost a really good friend about nine years ago he died due to an epilepsy attack. Well the attack itself didn’t kill him he was sleeping face down when it happened and there was no one home to help him so he suffocated. Creating awareness is important because people need to be aware this can be a pretty scary thing when in can cause real harm to those who get these attacks.

    1. Leslie so sorry for the loss of your friend. That is such a fear with epilepsy patients because so many do die in their sleep. There have been so many recent advances in monitoring that helps to make a difference. Devices that can alert the families to a seizure in hopes that someone can get to them to help. Hopefully as the years progress noone else will have to lose a good friend from this horrible disease. Again so sorry!

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